Saturday, February 08, 2014

I want to go off my medication

The one that switches off the leukaemia. The one that costs $5000 full price. The one that is my insurance policy.

I'm sick of feeling nauseas and tired. I'm sick of bone pain. I'm sick of feeling like I can't do things and go places and enjoy myself. I feel like I'm just trudging through life. I want to feel light and happy and energetic.

I know my doctor won't be happy with my suggestion. I'll remind him he said I'm 'probably cured'. If the leukaemia returns I can return to the medication, of course. Or maybe I can try an alternate drug that does the same things with fewer side effects - it's different for each patient.

I want to return to feeling normal. Wish me luck!

1 comment:

Liz said...

So how did it go with your doctor? Will be very interested to hear what happens. Hoping the pain, nausea and tiredness ease off, either way. I read an article recently about how difficult UK doctors have found it to get BC patients to 'comply' with their ongoing meds, due to miserable side effects (I have been incredibly lucky in this regard, with nothing but 'nuisance' stuff - it's all such a crazy crap shoot). Such a dilemma. All the best with finding a way forward into this next phase - and with the craziness of the year, now it's started 'for real'!!